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The CURA publications library is currently being digitized by the University of Minnesota Digital Conservancy. When the project is complete, the entire CURA publications library will be online and fully searchable. Unfortunately, during this process we are not able to honor individual requests for publications . Additionally, we no longer have physical copies of publications to send out.

New publications are digitized daily and the publications catalog on the CURA website is not automatically updated with links to scanned copies, so please search the CURA collection at the Digital Conservancy for the publications you are looking for:

Newborn Screen: An Underutilized Tool for Screening and Counseling for Thalassemia.

Author: 
Dalton, Joline and Lakshmanan Krishnamurti.

Thalassemia is a genetic blood disorder that affects an individual's ability to synthesize hemoglobin, the protein in red blood cells that transports oxygen and other nutrients throughout the human body. Because the incidence of thalassemia is high among people of Asian descent, thalassemia is emerging as a significant public health problem in Minnesota, where the number of Asian immigrants continues to grow. Although thalassemia is incurable and is often fatal, successful treatments and counseling programs do exist. The key to their success is early detection of the disorder through newborn screening. This article describes thalassemia and the treatment and counseling options available for the disorder, discusses the benefits and drawbacks of successful newborn screening programs, and reports the results of a survey of primary care physicians in Minnesota regarding their efforts to follow up on newborn screens for thalassemia. The authors conclude that the newborn screen is an underutilized tool for detecting thalassemia and other hemoglobin-related disorders. To improve newborn screening in Minnesota, the authors recommend implementation of a comprehensive program to improve identification and counseling of individuals with thalassemia, accompanied by an educational campaign aimed at physicians and the general public.

Journal: 
CURA Reporter
Publication date: 
2001
Publisher: 
Minneapolis: Center for Urban and Regional Affairs, University of Minnesota.
Pages: 
31 (3): 19-26
Online availability
Download from CURA: 
CURA call number: 
Reporter 31 (3)